Sunday, October 13th, 2019 - Parkinson's Australia

 

Increased support for People with Parkinson’s

 

Parkinson’s Australia together with Parkinson’s South Australia has been awarded over $1 million under the Morrison Government’s NDIS Information Linkages and Capacity Building National Information Program Funding Round to improve outcomes for people with Parkinson’s and other movement disorders.

 

Dr Moira Watson, the National President, said “the collaboration between Parkinsons Australia’s and Parkinson’s South Australia has enabled the creation of The Young Onset Parkinson’s Information Hub with benefits to be delivered to all Australians affected by Parkinson’s”

 

The CEO of Parkinson’s Australia said “Evidence from people with Parkinson’s under the age of 65 around Australia indicates a lack of information, education and understanding of the condition, its symptoms and progression.  Greater support and understanding are needed for social, community and economic participation. This innovative project will deliver up-to-date, high quality, accessible information for People with Parkinson’s and other movement disorders”.

 

Parkinson’s SA CEO Olivia Nassaris said, “At Parkinson’s SA our mission is to maximise choice, independence and well-being for people affected by Parkinson’s, or another movement disorder and this project does exactly that. The Hub – Information and training for people living with Parkinson’s and their care providers is an innovative app and online resource that will allow NDIS contracted providers, allied health professionals, family and paid carers up-to-date information about the condition. This will produce better outcomes for people living with Parkinson’s or another movement disorder that enables them to participate in family, work, social and recreational life.”

 

The Hub will remove current barriers preventing clients, health professionals, NDIA staff and contractors accessing high quality education and information. The delivery of the information through online and app-based platforms will appeal, and is suited, to how the under 65's prefer to access information and support. The Hub will provide people living in rural and remote communities with access to quality information in easily accessible formats.

 

For more information or to arrange an interview contact Jodette Kotz, CEO Parkinson’s Australia, M: 0417 236 998.

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Parkinson's Australia is the national peak body and charity representing more than 200,000 Australians living with Parkinson’s.  8 People are diagnosed every day and 1 in 5 will be under the age of 50. 

Parkinson’s symptoms may include muscle rigidity, tremor, postural instability and bradykinesia (slowness of movement).  Parkinson's doesn’t just affect movement, other symptoms can include pain, sensory changes, changes in the gastrointestinal system, anxiety/depression, problems with memory and thinking, dementia and sleep disorders.

 

 

Contact Profile

Jodette Kotz

P: 0417236998
W: Parkinsons.org.au

Keywords

Young Onset Parkinson's and other Movement Disorder NDIS

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