Wednesday, April 22nd, 2009

BUTTERFLY BALL 2009
A Magical Night - Raising Funds to Help Make Medical Miracles through the Touched by Olivia Foundation  Vascular Malformations Research Fellowship at  Sydney Children’s Hospital, Randwick


On Saturday 2nd May 2009, more than 600 special guests are expected at the 3rd annual Butterfly Ball at the prestigious Parkside Ballroom, Convention Centre, Darling Harbour where they will be treated to an evening of enchantment to help turn medical research into medical miracles for seriously ill children.

Following the tragic loss of their 8 month old baby, Olivia from Lymphangioma, Justine and John Perkins (founders of the Touched by Olivia Foundation) created the Butterfly Ball as the Foundation’s principal annual fundraising event.

To date, the Butterfly Ball has generated more than $250,000 for the Sydney Children’s Hospital, Randwick. These funds have improved facilities for the Intensive Care Unit and enabled the purchase of vital equipment, including a Bioletic Laser, the first of its kind for an Australian hospital, used to treat vascular malformations, and EEG-Telemetry Equipment for the diagnosis and treatment of children with serious neurological disorders.

In 2009, the Butterfly Ball aims to raise more than $150,000 with 100% of the proceeds funding a new research program at the Hospital - the Touched by Olivia Foundation - Vascular Malformations Research Fellowship.

The 2009 Butterfly Ball will generate funds launching this 3 year research program to investigate therapies which modify and/or prevent the growth of vascular malformations, including infantile haemangioma, as well as develop educational and support materials for families like the Perkins who are afflicted by these malformations.

“Sydney Children’s Hospital depends on the support from dedicated organisations like the Touched by Olivia Foundation to ensure our patients, families and staff have access to the best equipment and facilities. The Butterfly Ball is a wonderful occasion to celebrate, raise much needed funds for our Hospital and make a positive investment in the health and well being of children from all over New South Wales and beyond” said Dr Michael Brydon, Director of Clinical Operations, Sydney Children’s Hospital.

The magic of the Butterfly Ball will be heightened by the Master of Ceremonies – JAY LAGA’AIA with guest performances by Brent Street Kids, So You Think You Can Dance dancers, entertainment by The John Field Band and Cirque Du Soleil Aerialist with celebrity guests including Alicia Malone.

The glamorous prize list includes exquisite Diamond Jewellery by Musson and fabulous exclusive auction prizes such as entertainment, holidays, fine dining, sporting memorabilia and priceless experiences.
John Perkins, Founder of the Touched by Olivia Foundation said, “the Butterfly Ball will not only be a memorable night of glamour, fine food and music; it will mark our first major step in our aim to discover treatments and cures for diseases like lymphangioma, the disease that took the life of our baby, Olivia.”

“1 in 10 children are born with a vascular malformation, ranging from haemangioma to the more rare form lymphangioma. If through the ball and our other fundraising activities, we can initiate research and education programs that will have an impact on this disease, we will have fulfilled a dream to help other families and save them the heartache we have known,” he said.

‘By bringing Olivia’s Touch to others in need, we aim to create a positive change in the future of all our children,’ Mr Perkins said.

JOURNALIST NOTES

The Butterfly Ball

Date: Saturday 2nd May 2009
Time: 7pm – 12midnight
Venue: Parkside Ballroom, Sydney Convention Centre, Darling Harbour
For tickets and donations: www.touchedbyolivia.com.au
Master of Ceremonies: JAY LAGA’AIA
Celebrities include: Alicia Malone
Entertainment by: Brent Street Kids; “So You Think You Can Dance” Dancers; The John
Field Band; Cirque Du Soleil Aerialist
Unique Prizes Include:
• Exclusive Diamond Jewellery by Musson/Moet Raffle
• Fabulous Auction Prizes - holidays, fine dining, memorabilia, priceless experiences
• Table of 10 $1600

Touched by Olivia Foundation
Vascular Malformations Research Fellowship
Sydney Children’s Hospital, Randwick


The Touched by Olivia Foundation is proud to be the principal supporter of the Vascular Malformations Research Fellowship at Sydney Children’s Hospital, Randwick.

1 in 10 children are born with a haemangioma. Until recent years there has been limited research into vascular birthmarks which are a very rare group of disorders varying from the more common lesions (infantile haemangiomas) to some of the rarest (lymphangiomas) which can be life threatening to infants if located near a vital structure such as the airway.

This collaborative project between Sydney Children’s Hospital, Randwick and the Centre for Vascular Research at the University of New South Wales will be lead by Chief Investigator Associate Professor Orli Wargon and conducted over three years commencing with the appointment of a Fellow in the Vascular Birthmark Clinic and a dedicated post-doctoral researcher.

In the investigation and treatment of vascular malformations and tumours including haemangiomas and lymphangiomas, the research group will investigate therapies which modify and/or prevent the growth of the infantile haemangioma as well as develop educational and support materials for families afflicted by these malformations.

It is our aim that this program will position Sydney Children’s Hospital as a Centre of Excellence in the research and treatment of vascular malformations and tumours in children from Australia and beyond.

File Library

Contact Profile

Keywords

On Saturday 2nd May 2009, more than 600 special guests will attend the Touched by Olivia Foundation’s 3rd annual Butterfly Ball where the new Vascular Malformations Research Fellowship at Sydney Children’s Hospital, Randwick will be announced.

Sharing

More Formats